Gastroenterologist Aly Strauss discusses the importance of a holistic approach to barriers patients may face to receiving a liver transplant, and research findings that help identify who may need more resources. She helped create a multiculturally representative, engaging patient education video that prepares patients for what to expect when they are referred for liver transplantation. The video is designed to be understood at all reading levels, and it is translated verbally and transcribed and closed captioned in five languages. View and share the video here .
Hello. I'm dr ali Strauss, I'm an assistant professor of medicine in the division of gastroenterology and hepatology at johns Hopkins. I'm thrilled to tell you about our research to improve access to liver transplantation by assessing and addressing racial, ethnic and socioeconomic disparities. Recently researchers, clinicians have had increasing interest in understanding the effects of social determinants of health on liver related outcomes. In our multi center study about patients referred for liver transplantation. We describe the multilevel barriers, deliver transplant at the patient, community transplant center and national level. Based on these results, we wanted to further investigate the impact of community or neighborhood on access to the liver transplant Waitlist. However, a place based approach to study health equity is difficult because defining and measuring the multifaceted nature of patients neighborhood is complex. So the tools used and results generated are variable. We aim to define and compare measures of neighborhood level social determinants of health that are used to study liver diseases. In our scoping review, we search pub med for studies published in the past 10 years related to the concept of neighborhood and liver diseases. We screened 637 articles and identified 10 validated neighborhood in disease and one custom index. The most common liver diseases assess where patty cellular carcinoma and hepatitis C virus, 77% of the studies identify statistically significant associations between neighborhood factors and liver disease outcomes and five studies showed no association. Most indices included domains related to income, education and employment, the area deprivation index which is a validated index included the most domains related to neighborhood social determinants of health and evaluates at the smallest neighborhood unit. This scoping review characterizes the variation, advantages and disadvantages of several place based approaches to measuring its effect on patients with liver disease. This work is critical to a holistic approach to barriers patients made base getting to transplant and helps identify who may need additional resources. Another way we're trying to improve access to liver transplant is through patient education. The liver transplant evaluation process can be confusing and patients and their support systems benefit from receiving information in a variety of ways. So we have created a patient education video that prepares patients for what to expect when they're referred. It is designed to be multi culturally representative, engaging and understandable at all reading levels. If you like to view and share the video, you can find it on youtube, translated verbally and transcribed in close captions in five languages. The johns Hopkins division of gastroenterology aims to help all patients receive excellent and equitable care. By pairing this vision of clinical care with our unparalleled clinical research were able to improve outcomes for patients with liver disease. Thank you for your time
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